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Care Management

Every Person With SMI Deserves Real Treatment

Arizona's behavioral health system is failing the people it was built to serve. We are fighting for real care โ€” not warehousing, not neglect, and not fraud.

The System Is Broken

Four Failures That Kill People

Arizona spends billions on behavioral health โ€” and still, people with serious mental illness end up homeless, incarcerated, or dead. Here's why.

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Behavioral Health Residential Facilities (BHRFs)

Most BHRFs in Arizona provide non-hospital housing without nurses or doctors. Staff are Behavioral Health Technicians โ€” generally high school graduates who are not state-licensed. Most facilities are unsecured, meaning patients can walk out even during active psychosis.

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Insufficient Secure Facilities

Arizona lacks sufficient secure treatment facilities for people with SMI. The result? Incarceration or homelessness become the default outcomes โ€” not treatment.

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Behavioral Health Fraud

Billions of dollars flow through Arizona's behavioral health system with inadequate oversight. Facilities collect Medicaid payments while providing little to no actual treatment. Residents are warehoused, not helped.

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Medication & Treatment Gaps

Many SMI individuals cycle through emergency rooms and short hospital stays without access to consistent, skilled psychiatry. The medications that work โ€” including clozapine โ€” are dramatically underused.

The Hidden Crisis

What Is Treatment-Resistant Mental Illness?

Treatment resistance occurs when a person with a serious mental illness โ€” most commonly schizophrenia โ€” does not adequately respond to at least two different antipsychotic medications given at proper doses for sufficient time (typically 6โ€“8 weeks each).

Approximately 1 in 3 people with schizophrenia are treatment-resistant. They cycle through medication after medication, hospitalization after hospitalization โ€” while families watch their loved one deteriorate.

For these individuals, standard antipsychotics simply do not work. The voices don't stop. The delusions don't lift. The psychosis persists. And without the right intervention, the outcome is predictable: homelessness, incarceration, or death.

But there is a medication that works โ€” and almost nobody is prescribing it.

Signs of Treatment Resistance

โ†’Tried 2+ antipsychotics without adequate symptom relief
โ†’Continuing psychosis despite medication compliance
โ†’Repeated hospitalizations within a short period
โ†’Inability to function in daily life despite treatment
โ†’Persistent command hallucinations or dangerous delusions
โ†’Significant deterioration over time despite care

The Gold Standard

Why Clozapine?

Clozapine is the only FDA-approved medication for treatment-resistant schizophrenia โ€” and the most underused lifesaving drug in psychiatry.

~30%

of schizophrenia patients are treatment-resistant

60โ€“70%

of treatment-resistant patients respond to clozapine

<5%

of eligible U.S. patients actually receive clozapine

#1

most effective antipsychotic according to research

โœ… Why Clozapine Works

  • โœ“Works when all other antipsychotics have failed
  • โœ“Reduces suicidality โ€” the only antipsychotic proven to do so
  • โœ“Dramatically reduces hospitalization rates
  • โœ“Reduces aggression in treatment-resistant patients
  • โœ“FDA-approved specifically for treatment-resistant schizophrenia

โŒ Why It's Underused

  • โœ•Requires regular blood monitoring (WBC counts)
  • โœ•Psychiatrists unfamiliar with prescribing it
  • โœ•Pharmacies often don't stock it
  • โœ•REMS program created bureaucratic barriers (now removed by FDA in 2025)
  • โœ•Liability fears and misinformation among providers

The bottom line: Clozapine saves lives. In 2025, the FDA removed the burdensome REMS program that had restricted clozapine access for years. There are now fewer barriers than ever. If your loved one has tried multiple medications without improvement, ask their psychiatrist about clozapine. If the psychiatrist won't consider it, find one who will. Arizona Mad Moms can help you advocate for access to this life-changing medication.

The Legislative Fight

The Fight for ALTCS-SMI

Arizona's Long-Term Care System (ALTCS) provides home and community-based services for the elderly and physically disabled โ€” but has never included people with Serious Mental Illness. Senate Bill 1630 would change that.

Why ALTCS-SMI Matters

Right now, a person with Alzheimer's can receive attendant care, medication administration, supervised living, and respite care through ALTCS. A person with a serious mental illness โ€” equally unable to care for themselves โ€” gets none of that.

Instead, SMI individuals are placed in unlicensed BHRFs staffed by high school graduates, with no nurses, no medication oversight, and no security. They walk out during psychosis. They end up homeless. They end up in jail. They die.

Services SMI Families Would Finally Receive

Comparable to existing ALTCS benefits โ€” adapted for behavioral health needs

โœ“Attendant Care & Personal Care
โœ“Habilitation with Behavior Management
โœ“Adult Day Health Care (Behavioral Health Focus)
โœ“Supervised Community Living & Assisted Living-Type Supports
โœ“Respite Care for Families
โœ“Home-Delivered Meals
โœ“Nursing, Home Health & Medication Administration
โœ“Non-Emergency Transportation

This Bill Needs Your Voice

SB 1630 is currently moving through the Arizona Legislature. Contact your state senator and representative and tell them to support home and community-based services for people with serious mental illness.